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My wife, Cyndy, and I went to West L.A. near UCLA for her recent Botox treatment for TOS pain with Sheldon Jordon, M.D.
This treatment is so important to her well being. They last about 2 to 2.5 months and help keep her chronic pain down to manageable levels with the use of her pain medications and pain patches. This diminished pain level then allows her to do more physical therapy, helps move her body and build her core. She then is able to spend time on the treadmill that helps her cardio and creates natural endorphins to give her the feeling of well being.
I know it sounds complex, but as her caregiver, I notice the difference in her reaction to daily routines of living. When the Botox wears off, she will roll more easily into total body pain and shut down where any activity is difficult. Our concern is that this last treatment will last through September 25th, the date of our daughter, Missy’s wedding! We are keeping our fingers crossed looking forward to several weeks of productive wedding planning. Boy am I excited.
Do you use botox treatment to relax muscles and release tension and pain? How well does it work for you? How long does it last? Let us know how this works for you and where you obtain this service.
Phil La Puma, President
TOS Society™
We still have lots of complimentary services for TOS patients in pain. Contact me an I will set you up with one of our Professional Service Providers. ( See list on our web site).
Phil La Puma
phillapuma@aol.com
714-928-1561
Over the last two weeks I have given three talks about how to relieve pain with hypnosis. The important fact of why hypnosis works to relieve pain is through the research that has shown that pain is an interpretation of the pain signals sent by your nerves. This takes place in the “pain center” of the brain.
Hypnosis decreases pain by changing the brain’s interpretation. I work with many referred pain patients and have found much success in teaching the chronic pain patients to control their pain with self hypnosis.
Steven Hauser, M.D. is the Chair of the Department of Neurology at the University of California, San Francisco. He states that hypnosis is the one treatment that makes changes in the brain that significantly reduces pain.
The other advantage is that hypnosis has no side effects.
Dr, Hauser notes that only 1/2 of 1% of M.D.s are neurologists. 90% of the care of patients with neurological problems are under the care of general physicians. For TOS patients and chronic pain patients, the role of education is critical. Here at the TOS Society(TM) we are dedicated to training the medical and alternative care professional about TOS and related diseases. We also are searching out modalities that help our member “Feel Better Now!”
Thoracic Outlet Syndrome (TOS) must be recognized and treated as early as possible to improve the success rate of treatment. Keep visiting this blog to learn how you can participate in our research and what will help you now and in the future.
Phil la Puma
President and Director
TOSSociety (TM)
Who: Orange County Pain Management Support Group
What: Medical Hypnosis and pain management
When: June 1, 2010. 7 pm to 8 pm
How: RSVP at www.meetup.com/california-chronic-pain/.
Where: Group meetings held across the street from HOAG Hospital. Details available upon RSVP
Why: Learn about approaches to treat intractable pain
Guest Speaker: Phil La Puma. Mr. La Puma is a Certified Hypnotherapist, a Hypnosis Instructor and an International Hypnosis Federation member. He is Vice President of the Orange County Chapter of the International Hypnosis Federation,. He certifies alternative and complimentary care professionals for integrative medicine. Mr. La Puma specializes in Medical Hypnosis for Pain Management, Stress Relief, Pre and Post Surgery Hypnosis for Rapid Healing, and use of Hypnosis in Cancer Treatment, He received his engineering degree from Stanford University, and his MBA from the University of Southern California.
Scott Stoney, MD
Board Certified Pain Management Physician
Group Organizer
Being a TOS patient for 11 years along with painful days of Fibromyalgia, RSD, to dystonia, unlar nerve entrapment pain, neuralgia, total right sided numbness from the head to the toes, parasthesis, hearing loss, headaches, depression at its worst as the list goes on. The frustration of the insurance company consistantly denying and delaying the simplest of medical care is overwhelming. After spending my retirement for wellness, loosing my fruitful career I became one of the “others”. Cyndy was no more.
This first quarter of the year I was bedridden, took the life i have now which was spiriling out of pain control with a blood pressure at stroke-out levels and did something about it. My single goal was to get out of bed, out of the house and back in the world of living. Then called upon our TOSS certified physicians and professionals for help. Together my team has brought me back to life. You as the patient has to make the first concious step, research all levels of medicine, complimentary modalities and people like me, search Neurotalk forum http://neurotalk.psychcentral.com/ to speak with others, bond with life time friendships and you will find whats right for you. Be open minded for what you think is a simple fix by the knife may be something much simpler. A team of support.
THANK YOU team! THANK YOU Neurotalk for the years of web medical forum support for over 25k patients. THANK YOU Dr. Jordan for the dedication & expertise you provide. THANK YOU Dr. Collins for your unconditional time and love of the anatomy to share. THANK YOU Dr. Salinas my incredible physical therapist and his awesome staff. THANK YOU to Rhona and all our TOSS complimentary care professionals everyone of you are special and so very talented. THANK YOU Yukari for introducing me to the eastern side of medicine. You have made me a believer in the power of healing thru your hands, through acupressure and acupuncture. THANK YOU family and friends for keeping me grounded and never allowing me to give up.
Yes, it takes an army folks to be diagnosed not to mention the CORRECT treament to make life a little bit easier to bear. The complexity of Thoracic Outlet Syndrome is at its best a malingerer as is “living with cancer”. We are here to give you HOPE at TOSS, and the readiness to find your path to a new you living with TOS.
Be ready for a new technically awesome advanced website, freebies galore, sponsors, a shopping mall & more to put a smile on your face while we bust this TOS thing wide open. We are educating 24/7, and boy education is the key from physicians, attorney, insurance company’s to patient’s afflicted with TOS and their caregivers. So, it’s right to mention a gi-normous THANK YOU to all who have given to TOSS so generously. Your donations will take this awesome chairty Master P founded to greater heights.
Cyndy
TOS patient and co-founder
Judy Westerfield, M.A, MFT, a TOS Society(TM) Professional Provider, asked me to help her cover her booth while she gave one of the educational seminars for the National Fibromyalgia Association during the conference. Her topic was “Use of Guided Imagery to Manage Fibromyalgia.” Some of the other seminar topics were “Role of the Caregiver,” “The Value of a Support Group,” “Sleep and Fibromyalgia,” “Medication Management,” “Social Security: Getting what You Deserve(See SS Page Above),” and many others All with very useful information.
Many TOS patients have Fibromyalgia. “The Fibromyalgia patient experiences pain amplification due to abnormal sensory processing in the central nervous system.” Judy tells us, “While there is currently no cure for Fibromyalgia, better ways to diagnose and treat the chronic pain disorder continue to be developed.”
Contact Judy at http://judithwesterfieldfibromyalgia.blogspot.com/
Phil la Puma
Is MAY 15th at CSUF!
California State University Fullerton will be hosting FIBROMYALGIA Awareness Day Saturday May 15th. Check out all the information here http://www.fmaware.org/site/PageServer
Master P will be hanging with the best, Dr. Judi Westerfiled for this incredible day along with many friends and professionals. Please join us!
Apologize for the late notice…having a frustrating time regulating and conquering my own health
Last night was my second session with my new Eastern Medicine healing hands/acupuncturist. Still no needles. She’s working the entire system to bring blood flow;circulation back to the muscles, organs and brain. O my what a difference I am feeling. I would love to be able to afford twice a week from a decade of “swamp” but we will stick with once a week unless some miracle happens.
For the OC and Southern California patients interested her name is: Yukari Fujihara, M.S.., L.A.C She can be reached at 949.981.7281 begin_of_the_skype_highlighting 949.981.7281 end_of_the_skype_highlighting begin_of_the_skype_highlighting 949.981.7281 end_of_the_skype_highlighting. Awesome thing is she comes right to your home with table and fresh linens in toe.
If you have insurance and prefer a more Western approach. There is a gal by the name of Shannon at Ando and Aston physical therapy. She is a step away from getting her doctorate. She also calls herself an herbalist. To make an appointment call 714.974.0330 http://www.andoaston.com/
My first session with an EASTERN medicine healer and acupuncturist. No needles this session just hands. What an amazing triumph! I have never had such pain relief and relaxation in my life. Morphine cant even compare. Must of lost 10lbs just from her removing the build-up of acidity/toxins from the years of pain in my muscles, nervous system…the whole system. It is amazing how the toxins build up in you thoracic outlet area when the circulation is restricted. Yukari Fujihara specializes in difficult and chronic pain conditions. She smiles the whole time as she can feel the relief in the tissues and muscles as they relax. This is not like any massage I have ever had. I felt the energy from her hands moving into my body. I find it difficult to describe, but I do know that I had to pee 4 time over a short period of time as I expelled the toxins. I will have her come to me again next week and I will keep you informed on the value of her work for TOS Related pain.
Cyndy
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