Comments for Thoracic Outlet Syndrome Society

Comment on TOS AND TRIGGER POINT RELIEF by admin

admin — Mon, 07 May 2012 00:18:56 +0000

Sorry I do not. We have an accupuncture/accupressure provider in Orange County. Email Cynlapuma@sbcglobal.net and ask for her information on Yuri. . .

Comment on TOS AND TRIGGER POINT RELIEF by jules

jules — Fri, 23 Mar 2012 22:59:09 +0000

Hi, do you know who does Trigger pt. massage in L.A.?

Comment on Do not Make This Social Security Mistake – It Cost me $24,000! by tracyb22

tracyb22 — Thu, 08 Mar 2012 19:59:18 +0000

i seem to b in the same shoes as u i have been diagnosed with TOS for 3 years now. I have had a first rib resection along with 10 shoulder surgeries. I have filed for disability i was denied 2 times waiting on a court date now this has gone on seems forever and ever. I have had multiple injections in and around my neck they just performed a neck surgery also, I don;t feel any better if anything maybe worse due to the pain of the surgery, does anyone have any other suggestions on how to get relief from TOS………….thank you in advance

Comment on What Is The TOS Society? by Angel

Angel — Wed, 07 Mar 2012 03:58:32 +0000

I am considering TOS decompression surgery. I would greatly appreciate input from other’s who have been through this process. Thank you:)

Comment on Do not Make This Social Security Mistake – It Cost me $24,000! by Kristin

Kristin — Wed, 22 Feb 2012 20:02:40 +0000

I have just been diagnosed with TOS last month and had 2 scalene muscles removed from my neck. I am still having burning sensations in my hands and aching in my shoulder and neck. I have a private disability insurance that I am going to use. They told me to wait 9 months and then file with social security. Is this true or should I be filing now. I am going to file for workers comp as well. I was told this will probably be career ending.
Thanks for any info that can be provided
Kristin

Comment on THANKFUL THURSDAY by jules

jules — Tue, 14 Feb 2012 20:01:40 +0000

Hello, I am wondering how you are doing after your injections? I have recently been diagnosed with TOS and am in L.A. I am looking into Scalene Block injections and a good doctor who takes Blue Shield. I have seen Dr. Williams at Kerlan Jobe and Dr. Filler who is not covered by my insurance. I am shceduled to see Dr. Jordan but again is not covered. Any recommendations?
Thanks

Comment on What Is The TOS Society? by Jeanette

Jeanette — Mon, 13 Feb 2012 22:58:45 +0000

I have bilateral extra c6 transverse process ribs.Two years of searching and several doctors, I finally found a great doctor to do a rib resection. When I went in for surgery I could barely use my arm. 4 months post op,,still weak, heavy painful and numbness.Not great, but better.still unable to raise my arms above waist level , move them side the side or hold more than 2 lbs. I filled for dissability when I could no longer work. I have been denied twice and gone all the way to see a judge. Just found out I was denied benifits. These judges/attorneys/vocational experts have no idea of how complex TOS is. It was decided that I can do laundry sorting and light manufacturing work. Well, intersesting. I havs TOS Bi laterally. I havent even had the right side rib resection yet! . Since 2009 I have had arnold chairi decompression, Bi lateral carpel tunnel realease, all in the hopes of correcting the weakness in my arms/hands. Im not stopping here, I guess that means going to the appeals council. Has anyone gone through this yet ? Do I have to have an attorney for this step? (She wasnt very helpful at my hearing ) …how do I get theese people to understand and believe my condition? I am wondering if my vascular surgeon could write something up and I could send it in with my request to the appeals council. Any help would be greatly appriciated .

Comment on What Is The TOS Society? by admin

admin — Sat, 07 Jan 2012 03:49:22 +0000

o yes, many a times…looking forward to it and bringing along a “team” of experts

Comment on TOS & SSDI *Social Security Disability by admin

admin — Sat, 07 Jan 2012 03:48:06 +0000

email us your location, any confirmed diagnosis and what physicians you have seen

Comment on TOS & SSDI *Social Security Disability by mist2030

mist2030 — Thu, 05 Jan 2012 00:19:30 +0000

I am new to this site and am pleased that I found it. I need help in finding a physician for a diagnosis. I have had all the symtoms for 9-10 years now and I am frequently in pain. I filed for disability thinking the problem was in my neck as I had broke it several years ago. When I go to the doctor they don’t know what to make of me because they can’t identify the problem but has I have never been tested for TOS. Some one please help me. I am convienced as well as my daughter that this is my problem. My daughter is a Massage Therpist. She was the one who told me about this site that discribes all my symtoms. I long since quit work because of the lack of being able to raise my arms and the pain. I have a real bad time trying to get comfortable in the bed to sleep. Can you suggest a physician to go see that knows about this? I appreciate all the help and or comments you may have. mist2030@live.com